Here are a selection of websites we have researched, which you may find interesting and useful.
If you have any links you wish to add which will be useful for other members, please let us know by sending a message from the Contact Us page.
A local contact called Karen helps parents of children with speech and language and/or communication difficulties. Karen can offer advice and signpost you to support groups.
ASD Friendly is a close-knit community of parents and carers of people with Autism and Asperger’s Syndrome. Established in April 2003, ASD Friendly brings us together to share tips, vent frustrations and generally have a laugh about things that other people would never understand. We know that caring for a disabled child is difficult and rewarding; it’s good to know that we don’t need to do it all alone.
The ‘British Dyslexia Association’ promotes early identification and support in schools to ensure opportunity to learn for dyslexic learners. They also represent the needs of dyslexic people on leaving school, in higher education and in work, offering courses and resources for those of all ages.
The Buckinghamshire Family Information Service provides information about services and support in Buckinghamshire.
Working with over 350 children in Buckinghamshire, we provide services for disabled children aged 5-19 including weekend clubs across Buckinghamshire in various locations and youth clubs and holiday activities.
Buckinghamshire Special Educational Needs and Disability Information, Advice and Support (SEND IAS) Service (formerly Parent Partnership).
All local authorities, by law, have to provide children and young people with SEN or disabilities, and their parents, with information, advice and support. Buckinghamshire SEND IAS Service is the information, advice and support service here. Our service is free, confidential, impartial and at arm’s length from Buckinghamshire County Council.
Carers Bucks is an independent charity supporting family carers in Buckinghamshire.
Carers Trust is a new charity which was formed by the merger of The Princess Royal Trust for Carers and Crossroads Care in April 2012.
Carers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. With our Network Partners, we aim to ensure that information, advice and practical support are available to all carers across the UK.
Adviza, the overarching company for Connexions Buckinghamshire, has been commissioned to deliver the Independent Support service from 1st September 2014 to 31st March 2016 across the 8 Thames Valley local authority areas, including Buckinghamshire, working closely with Parent Partnerships and Parent/Carer Forums in each area.
Independent Support is a national programme funded by the Department of Education via the Council for Disabled Children (CDC), as part of the measures associated with the recent Special Educational Needs and Disabilities (SEND) Reforms and the implementation of the Children & Families Act 2014.
The programme will provide Independent Supporters to work directly with young people with Special Educational Needs and Disabilities and their parents going through the new assessment for an Education, Health and Care plan.
‘Contact a Family’ is a UK charity offering information and support to parents caring for children with any disability, special need or rare disorder.
DIAL is an independent network of local disability information and advice services, run by and for disabled people. Every year DIALs help over a quarter of a million disabled people.
Welcome to DotComUnity – this is your Disability Directory, for activities, events and services in your area.
The Early Support Programme is for parents and carers of disabled children and young people from birth to adulthood. This includes coordinating support for health, education and social care.
Families United Network (FUN) is a registered Charity and membership organisation which works to support children, young people and families living with disabilities throughout Bedfordshire.
KIDS is a leading disabled children’s charity that has been in existence for over 40 years working to enable disabled children and young people and their families to enjoy their lives.
We work with children and young people from birth to the age of 25 who are disabled; that is they have a physical, sensory or mental impairment (including mental health issues) which in interaction with social, attitudinal and environmental constraints creates barriers which hinder their full and equal participation in society. Our work is also with the individuals who are affected by this situation (such as families and young carers).
We provide an audiobook service for children and adults with a disability, illness or learning difficult that prevents them from reading or comfortably holding a book. We provide our audiobooks in 3 formats: MP3 CDs which are sent via Royal, as internet streaming through our website www.listening-books.org.uk and as downloads that can be transferred to a portable player such as an iPod. We have over 7000 titles including fiction and non-fiction titles. We also run a scheme called ‘Sound Learning’, which means that we are able to provide a number of educational titles that are unavailable elsewhere in the audio format, such as ‘Under the Weather: Stories About Climate Change’ by Rob Bowden, ‘Playing on the Edge’ by Neil Arksey and ‘To Kill a Mockingbird: A Text Guide’ by CGP publications.
For information relating to epilepsy, diet and all things special needs (buggies/holidays/education battles). It has a good search facility on it.
nasen is the UK’s leading organisation supporting those who work with or care for children and young people with special educational needs or disabilities (SEND).
The Official ‘National Health Service’ Central Government website.
111 is a new service that’s being introduced to make it easier for you to access local NHS healthcare services in England. You can call 111 when you need medical help fast but it’s not a 999 emergency. NHS 111 is a fast and easy way to get the right help, whatever the time.
NHS 111 is available 24 hours a day, 365 days a year. Calls are free from landlines and mobile phones.
The National Network of Parent Carer Forums (NNPCF) was launched in 2011, and is funded by central government. We became a formally constituted Group in November 2013. The NNPCF membership is made up of Parent Carer Forums of which there is one in almost every local authority area in England. Each parent carer forum in receipt of the Department of Education participation grant is a member of the NNPCF.
‘Parenting Styles’ provides information on different styles of parenting: how to adapt parenting to suit your personality, advice on parenting in specific situations and how to find help and support with behavioural problems.
The ‘Refugee Council’ is there to provide support and help to refugees and asylum seekers and to make information and advice available to them directly, they also work closely with community and international organisations as well as campaign and lobby in parliament, and promote the Council through links with the media.
SPACE is a parent-led group that meets monthly to chat, listen, laugh or cry as we support each other in caring for one another and for any child that has behavioural difficulties
Special Kids in the UK is a member based charity offering contact, information and support for families of children and young people with special needs throughout the United Kingdom. Special Needs covers a broad spectrum including learning, physical and behavioural difficulties.
The Family Fund provides timely grants to families with severely disabled children, based on families’ views and needs.
A recreational facility for disabled children, their families, friends, schools and groups. Thomley is situated in Worminghall, on the Oxfordshire/Buckinghamshire border. “I don’t know of any other place where I can take the whole family with complete confidence that it will be a good day for everyone” – Parent
Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Unique is a UK-based charity but welcomes members worldwide
YDA empowers children and young people who communicate by Sign Language, and supports their parents and siblings to communicate with them.